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admin 2021-12-28 23:25 2850人围观 胶质瘤治疗方法

这个故事主人公,到现在已经存活20年了 Kio Ebrahimzadeh在大洋彼岸美国加利福尼亚州是一名警察2001年确诊间变星形细胞瘤2018年又确诊胃癌IV但是他都很幸运的治愈现在依旧活跃在网络19年的时候他在个人帖子上分享了他患癌整个心路历程本文将其中英文翻译出来


On Jan. 4th of 2001, I suffered a grand mall seizure, while on duty, having lunch which led to finding a brain tumor in my right temporal lobe. Luckily a fellow Police Officer and I were sitting down having lunch when this happened. I was rushed to our local ER in an ambulance. Prior to the seizure I experienced small temporal lobe headaches when I was waking up, 3-4 times per month for almost two years. I got used to it, as it would go away after a few hours. After that 2-3 unexplained nose bleeds in my sleep during the year prior to the seizure. Then my left arm went numb for 2-3 days, two months before the seizure. I reported it all to my doctor, and he did nothing about it. I had just turned 30 at the time, just starting to advance in my career as a Police Officer, with almost five years on. I was devastated. I already had established my reputation as a Police Officer with the quality of work that I was doing. I had already been selected as a Field Training Officer in 2000. I had already earned two commendations from our Ventura County District Attorney's Office, and my first 10851 V.C. Award from the State/CHP for recovering stolen vehicles. My only option was surgery. I was told that I had to have it immediately. I went to UCLA, went to two neuro surgeons there. During a brain mapping test, the memory test went bad, which led the second neuro surgeon to believe that he could only remove 50-60% of the tumor, and I would have to have treatment for the rest of my life. I declined that option, and decided to get a third opinion. My family and friends all did some research on the internet, and came up with one name: Dr. Keith Black. I went to Cedars Sinai, and met with Dr. Keith Black. His knowledge, grace, and confidence made my decision easy. I chose to have my surgery done by Dr. Black. I'm still thankful I did today! He gave me my life back! I was guided by something the whole way. His golden hands are why I'm at where I'm at today! I later found out that the reason my memory test went bad at UCLA was because I was slightly over-sedated. Thank You to whoever did that ;-)


2001 年 月 日,我在商场值班吃午饭的时候癫痫大发作,在右颞叶发现脑瘤。幸运的是,一名警察同事在一起吃午饭。我被救护车送往当地的急诊室。在癫痫发作前2年,每个月都会出现3-4次醒后轻微颞叶痛不过会在几个小时后消失我也习惯了。在癫痫发作前1年,在睡眠中2-3 次不明原因的流鼻血癫痫发作前2个月2-3 天左臂麻木。我把这些告诉医生,他也没说啥。当时我刚满 30 岁,当了5年警察由于出色的工作能力 2000 年被选为外勤培训干事获得了文图拉县地方检察官办公室的两项嘉奖,并因追回被盗车辆而获得了州/CHP 颁发的第一个 10851 VC 奖。但是面对这个脑瘤我当时唯一的选择是手术。我去找了加州大学洛杉矶分校的两位神经外科医生。在他们那里进行了一次脑部定位测试,印象中测试结果非常糟糕,第二位神经外科医生直接认为只能切除 50-60%,这样的话我的余生都将接受治疗。我拒绝了这个方案,并决定寻求其他方案。我家人和朋友都在互联网上查询资料,看到一个名字Keith Black 博士。然后我就去了西达斯西奈,见到了 Keith Black 博士。他优雅自信知识渊博让我下定决心由他帮我完成手术。到今天我依旧感谢我当时下的决定!是Keith Black 博士给了我新的生命!一路上引导着我没有他就没有今天的我!后来我发现,我在加州大学洛杉矶分校的测试结果很差是因为我镇静过度。感谢这一路过来的人;-) 


 Feb. 6th 2001, I had surgery by Dr. Black. I was released from the hospital two days later. The tumor was completely removed without causing any injury or damage. A week later the final biopsy came back on the tumor. It was determined to be a grade 3 anaplastic astrocytoma with grade 4 cells. Not what I had hoped for. On the scans I was told that it looked benign. My options were radiation, then chemotherapy. I just wanted to get back to my life and career as soon as possible. I knew it was going to be a rough road. I was later told that most people with my type of tumor don't survive. That inspired me to prove them wrong. I'm kind of stubborn like that ;-) Beginning two weeks after surgery I had almost seven weeks of daily radiation therapy which was the most difficult part of the whole experience. There were days when I would go to radiation and come home doing nothing else but eating, sleeping and resting for the next day. I looked forward to the weekends because there was no radiation. I finished radiation in April, 2001. I was advised that chemotherapy would be a very wise decision in my case. I am a gambler, but didn't want to roll the dice on this one.




Spacer I went to a local oncologist who told me that traditional chemotherapy, IV injections, was all that was available for me. He said that it would only have a 50-50% chance of working for a brain tumor patient. This obviously caused great concern for me. Why would I want to get sicker if there was only a 50-50% chance of it being successful? He told me that if I were his son, he would refer me back to UCLA for the post care. I sincerely thank Dr. Reynolds for his honesty and integrity. I listened to his advice and went to Dr. Tim Cloughesy at UCLA. Dr. Cloughesy informed me of a new type of chemotherapy (pill form) that was out, called Temodar, which was brain specific, and FDA approved in 1999. I didn't hesitate, let's get it done! Twelve months of chemotherapy (Temodar) started in July of 2001 with monthly MRI scans and doctors visits. Again I was guided by something, angels I presume. I've been in good hands under Dr. Cloughesy's care ever since. Dr. Cloughesy's amazing kindness, care, diligence, knowledge, experience, and support for his patients make it easy.


我去看了当地的肿瘤科医生,他告诉我传统的化疗,静脉注射,对我来说是唯一可用的方法。他说,它对脑瘤患者只有 50%几率有效。这显然引起了我的极大疑问。如果成功的几率只有 50%,我为什么还要做了?他告诉我,如果我是他的儿子,他建议我回加州大学洛杉矶分校进行后期护理。我真诚地感谢Reynolds博士的诚实和正直。我听取了他的建议,并去了加州大学洛杉矶分校的 Tim Cloughesy 博士那里。Cloughesy 博士告诉我一种新型化疗(药丸形式)已经问世,称为 Temodar,专为脑瘤设计的,FDA 于 1999 年批准。我毫不犹豫接受这个方案!2001 年 月开始为期 12 个月的化疗 (Temodar),每月进行一次 MRI 扫描和医生就诊。我再次受到某种东西的引导,我认为是天使。从那以后,我一直得到 Cloughesy 博士的很好的照顾。Cloughesy 博士令人惊叹的善良、关怀、勤奋、知识、经验和对患者的支持使这一切变得轻松。


Spacer Sometime around October 2001 my doctor said I was doing so well that I convinced him to let me go back to work part time, doing desk work. For me it was heaven to just be back to my career, even if it was part time. I was bored as well, as my family live in LA and the only other thing that kept me occupied at the time was doing light weight lifting, playing basketball, running, or walking my dog just to get out of the house. My family, friends, and second family at the Oxnard Police Department were there with me the whole way. Being around such good people inspired me to get back to my career/normal life as soon as possible ;-)


2001 年 10 月的某个时候,我的医生说我做得很好,我说服他让我回去做兼职工作,做案头工作。对我来说,回到我的职业生涯就是天堂,哪怕是兼职。我很无聊,因为我的家人住在洛杉矶,当时唯一让我忙碌的事情就是举重、打篮球、跑步或遛狗,只是为了走出家门。我的家人、朋友和第二个家人---奥克斯纳德警察局一直陪着我。和这么好的人在一起激励我尽快回到我的职业/正常生活;-)


Spacer Jan. 2002, I was ready to get back in the saddle. I went back to work full-time on patrol. Doctors said to do anything that was therapeutic and makes me happy. Keeping the brain happy and positive was the prescription. Being a Police Officer was what made me happy, and being on the sidelines for almost a year was tough to swallow. What I needed to do was very clear. As soon as I went back I resumed my position as a Field Training Officer. My supervisors and peers saw that I was still the same Kio not lacking in quality, performance or skills. With the remaining cycles of chemotherapy I took about one week per month off from work for the treatments until I was done. I didn't want to be sidelined any longer. I went back to work with vigor taking criminals off the streets to make up for lost time. I was still doing the quality work of work that I was known for, but not the quantity.


2002 年 月,我准备好回到工作岗位。我回去全职巡逻。医生说要做使我快乐的事情这对治疗有帮助。保持大脑快乐和积极是药方。作为一名警察让我感到快乐,但在场外待了将近一年却很难受。我很清楚。我要恢复了外勤培训干事的职位。我的上司和同事们看到我仍然是那个 Kio,依旧高效出色。在剩余的化疗周期中,我每个月大约休假一周进行治疗,直到完成为止。我不想被边缘化了。我回到工作岗位,精力充沛地把街上的罪犯赶走,以弥补失去的时间。


 In June of 2002, while I was on duty in uniform, I ran into the doctor that had told me I wasn't going to live. He had last seen me in April 2001. After I picked his jaw up from the ground, he told me that I was a "walking miracle", as I showed off the one inch of muscle that I had regained on my arms. You can go to the best doctors and have the most advanced treatments and medicine, but the rest falls on you!


2002 年 月,当我穿着制服值班时,我遇到了医生,他惊掉了下巴说上次见到我是在 2001 年 我应该不在世了。说我是一个“行走的奇迹”,我还展示了手臂上恢复的一英寸肌肉。你可以去看最好的医生,有最先进的治疗和药物,但剩下的就靠你自己了!


Spacer In 2003, I earned my third commendation from our Ventura County District Attorney's Office, and also my second 10851 V.C. Award from the State/CHP for recovering stolen vehicles ;-) I still hold those records at the Oxnard Police Department ;-)


2003 年,我获得了文图拉县地方检察官办公室的第三次表彰,也是我第二次获得州/CHP 颁发的 10851 VC 奖,因追回被盗车辆;-) 在奥克斯纳德警察局这项记录依旧是我保持着;-)


Spacer Sadly in 2004 I was retired from the career that I loved, because it became too difficult and demanding on my health. But I tried to make it work for 3 more years, because of my love and passion for my career. After that I quickly became aware that I could no longer work full time in any capacity. In 2005, I went on to work part time, protecting celebrities. Which was the perfect scenario for me, given my health status. I was even hired by Playboy at that time ;-) Not a bad retirement job ;-) I was still protecting and serving, but in a much less demanding, and less dangerous environment. It gave me purpose and I enjoyed it. From 2007 forward I worked part time for Playboy only. In March 2010, I had a small seizure going in to work on my fourth day during that week. Dr. Cloughesy advised me to put work aside or work less. I promised him that I would work less, and not overexert myself, given my new limitations. Who would want to stop working for Playboy? Sadly in 2011, I had to put that fun, easy work aside, as it became too demanding on my health. I miss working for Hef and the girls. All is well, all we can do is adapt and move forward. Can't say I didn't try.


可悲的是,2004 年我从我热爱的职业中退休,因为它变得太难了,这对身体健康要求太高了。但由于我对职业的热爱和热情,我试图让再工作 年。在那之后,我很快意识到我不能再以任何身份全职工作。2005年,我继续兼职,保护名人。考虑到我的健康状况,这对我来说是完美的场景。我当时甚至被《花花公子》雇用;-)不错的退休工作;-)我仍然在保护和服务,但在一个要求低得多、危险性小得多的环境中。它给了我目标,我很享受。从2007年起,我只为《花花公子》做兼职。20103月,我在这周的第四天上班时有一小部分癫痫发作。Cloughesy 博士建议我将工作搁置一旁或减少工作量。我向他保证,鉴于我的问题,我会减少工作,而不是过度劳累。谁愿意停止为花花公子工作?可悲的是,在 2011 年,我不得不把那份有趣、轻松的工作放在一边,因为它对我的健康要求太高了。我想念为 Hef 和女孩们工作。一切都很好,我们所能做的就是适应并继续前进。不能说我没有尝试。


Spacer By the way, this cancer was determined to be a work related injury for Police Officers and Fire Fighters because of our radio equipment. Prolonged exposure to EMFs (Electromagnetic Fields) and RFs(Radio Frequencies) from our radio equipment. Given that fact I later found out that cell phones carry stronger EMFs and RFs. I've kept my cell phone away from me ever since. If I am on it, I use a wired head set. Please keep this in mind, if you use your cell phone regularly, especially for work. Make it a habit to use it wisely and safely.


顺便说一下,由于无线电设备,我们长时间暴露在 EMF(电磁场)和 RF(射频)中。这种癌症被确定为警察和消防员的工伤。鉴于这一事实,我后来发现手机带有更强的 EMF 和 RF。从那以后我一直把手机放在远离我的地方。如果我在上面,我会使用有线耳机。如果您经常使用手机,尤其是工作时,请记住这一点。养成明智和安全使用它的习惯。


Spacer Where's your heart, where do you want to be?




Spacer I chose to fulfill my goals, remain in my career, continue on and impress my family and friends. I chose to live. My story was filmed up until the end of radiation and was airing on Discovery Health. I want people in my situation, or any other life threatening situation to know that:


我选择实现目标,继续我的职业生涯,继续给我的家人和朋友留下深刻印象。选择活着。我的故事一直被拍摄到人生的结束,并在 Discovery Health 播出。我希望处于我这种情况或任何其他危及生命的情况的人知道:






Spacer Be strong, be positive, be active, never quit, keep the faith! and always remember that someone else has it worse than you do.




Spacer I've followed these ideals, and I'm now an 18 year Survivor as of January 4, 2019 !


我遵循这些理念,截至 2019 年 月 日,我已经是 18 年的幸存者!


Spacer Also regarding the stage IV stomach cancer that I was dealing with last year, I did 7 rounds of Immunotherapy treatments Keytruda from Jan-Aug. All the cancer was GONE!! Keytruda is an amazing miracle drug as it wiped out stage IV cancers in my body very easily. The treatments were 30 minute infusions, very light and smooth, the only side effect that I felt was a little fatigue. My oncologist had me do 3 additional rounds from Oct.-Dec. to finish this off for me and kill off anything that isn't visible in the scans. He said since I have had such great success with the Keytruda, this should do it for me. Just monitoring by Pet CTs for the next 5 years. I'm already 14 months past that, and I wouldn't be here without the Keytruda.


同样关于我去年处理的 IV 期胃癌,我从 月至 月进行了 轮免疫疗法 Keytruda 治疗。所有的癌症都消失了!!Keytruda 是一种神奇的神奇药物,因为它可以非常轻松地消除我体内的 IV 期癌症。治疗是 30 分钟的输液,非常轻柔,我觉得唯一的副作用是有点疲劳。我的肿瘤科医生让我从 10 月到 12 月再做 轮。为我完成这一切并清除扫描中不可见的任何东西。他说,既然我在 Keytruda 上取得了如此巨大的成功,这应该对我有用。在接下来的 年中,只需通过CT 进行监测。在过去的 14 个月中,如果没有 Keytruda,我就不会在这里。